Hi mates, I hope you all have been effectively and that you are kicking off summer time in the best way attainable!
So many of you have reached out to request how Dominic is doing and even though I share a rapid photograph on Instagram tales occasionally, I required to pop in swiftly to give you an update.
Considering the fact that I previous wrote, Dominic has finished cycles two and three of chemotherapy. Equally manufactured him ill a person day of the procedure but with a tweak of the nausea meds, he was emotion superior.
His new preferred in-medical center exercise? New music treatment! He gets these a big kick out of playing the devices 😁
He is also Incredibly into every day bingo 😍
On the last working day of his second cycle, he had the opportunity to tour the helicopter pad on the medical center roof, which he Liked. The perspective was incredible and we figured out loads of pleasurable details (mother enjoys a very good industry excursion, ha)!
Though residence, he continues to enjoy and really significantly enjoys lifetime as common, which include loads of outside the house time now that it is nice out!
Involving rounds two and a few of chemotherapy, we traveled to New York for Dominic to be found at Memorial Sloan Kettering, the place they have a workforce of pediatric oncologists who specialize in neuroblastoma.
He is currently being handled less than their steerage, so considerably receiving all of his chemotherapy listed here in Pittsburgh, but we will vacation there for his tumor removal surgical treatment.
We both of those had our initial Uber journey, had Shake Shack for the initial time (SO Good), and Dominic experienced his initially continue to be in a resort. A effective excursion, but there is really no location like household!
Our New Ordinary
We are finding incredibly employed to the symptoms of lower hemoglobin (two times in a row of using more drink breaks than normal although playing outside the house? We guessed he was heading to want blood when he went to his clinic appointment the subsequent working day and, sure sufficient, he did) and reduced platelets (far more bruising). He has had various transfusions of equally since beginning this journey, so a good major thank you to anybody who has ever donated blood, as we are now so significantly extra acutely conscious of the relevance of this selfless act.
Hemoglobin, platelets, white cell counts, neutrophils, and ANC figures are now just common dialogue in this article.
We’ve all sort of settled into our new regimen of treatment plans, visits to the medical center, running medicines, line flushing, etc.
The most significant hurdle considering the fact that this very last cycle of chemotherapy is that we have experienced to give Dominic everyday photographs (vs the one-time photographs following the initially and second rounds) and it is the complete worst. He has usually hated photographs and he just dreads them, I get anxious, and it’s just a total SCENE. The day by day shots ended up utilized since of his forthcoming stem mobile harvest, to guarantee his counts ended up robust (see underneath).
This coming week, Dominic will have a stem mobile harvest, where by they will insert a non permanent line to extract stem cells (which will then be saved) need to he want them in any capability in the course of treatment down the street. It is our hope that he would not, but they will be there if he does.
The future substantial step is in two weeks when he will have his tumor elimination surgical procedures. Adhering to the medical procedures, he will have one more round of chemotherapy and then a handful of weeks following that, a battery of exams and scans to see exactly where we stand with the disorder.
Make sure you keep on to pray that the cancer is responding to therapy, that the surgeons are able to take away the tumor properly and properly, and that he has a reasonably effortless recovery.
Entertaining at Home…
A few a lot more photos of the young ones from recent weeks ❤️
Wishing you all a exciting and harmless commence to your summer time! ☀️❤️