Hello every person! I can’t believe that that we are on the cusp of Labor Day and summer time coming to a close. The final 5 to six months have been a full blur and this summertime, in unique, has flown by. There is been hospitals (chemo, stem mobile harvest, operation), clinic appointments, and driving back again and forth to New York.
But, a person foot in entrance of the other and just one working day at a time, we are grateful to be heading into a new year with a sturdy boy and hearts entire of hope.
Dominic experienced a hectic initial few months of August…
🔍 Initially, he had a new set of scans (MRI + MIBG) as well as a further bone marrow biopsy. The scans even now present disease during his bones but most of the spots are “dimmer” than in advance of, and the bone marrow involvement reduced by more than 50%.
So, there is even now perform to do, but there is an enhancement. And! Dominic did equally of the scans with no anesthesia (he has been sedated beforehand because you have to lay entirely nonetheless and the MIBG is over 2 several hours). He’s a rock star.
🏥 Up coming, he experienced his first round of immunotherapy. The antibody he’s given targets the protein of neuroblastoma cells and given that they usually sit on nerve cells, there is significant nerve suffering accompanying the treatment method. The infusion is short (45 minutes) but extreme.
There is a ton of pre-medicine and agony administration throughout and following, and he would basically slumber the total rest of the day afterward. But, the solutions are outpatient so no hospital stays, and they do not affect counts like chemotherapy, so no neutropenia or blood or platelet transfusions.
🦸♂️ Then, he crossed off an additional significant hurdle… radiation. He did this awake with no anesthesia as well… twice a day for 5 times, he was strapped down applying a special mask that was molded to his head and higher physique to hold his head and neck in the actual similar place each individual time (his clavicle was radiated due to the cluster of diseased lymph nodes that were being there, as well as the tumor bed in his stomach). An awesome woman who functions there has the youngsters decide what they want their masks to be and then custom paints them… Dominic chose Iron Person. There are some unbelievably unique people in this world.
He could also pick whichever music he required to be piped in each individual time and selected Christmas tunes every working day 💕🌲 He entirely rocked it and the men and women doing work there had been absolutely phenomenal.
➡️ Next… we get to be household for a couple of months, then it is back to NY for one more round of immunotherapy, a new established of scans, and yet another bone marrow biopsy.
📘 In the meantime, he started kindergarten this week! He’ll be joining class almost until finally his oncologist presents him the go-ahead to show up at in human being, which we’re hoping will be late September.
💈 His eyebrows, eyelashes, AND hair have all commenced growing again! He’s experienced a ton of power, has obtained again all of the fat he dropped soon after surgical procedure and that final spherical of chemo and is normally doing truly, actually properly.
❤️ Thank you all for your ongoing prayers, it signifies so a lot to our family members.
In other news, I am organizing to get some e-mail scheduled out heading into the slide and holiday getaway year to refresh some internet site articles. So, you can seem ahead to me popping into your inbox more on a regular basis in the coming months 🎉