Joyful October, good friends!
I hope you have all experienced a amazing start out to slide and are experiencing the cooler temperatures and beautiful tumble days.
I’m popping in currently with a new Dominic update. Thank you all so a great deal for your e-mails, the cards and items that you’ve despatched, and all of the prayers you’ve presented up our family members appreciates it all so really a great deal ❤️
The Most up-to-date Therapies and Scans
Just after Labor Day, Dominic experienced his next round of immunotherapy therapy, followed up by a new set of scans and a bone marrow biopsy in mid-September.
We obtained very encouraging news… the scan showed that 50% of the most cancers has cleared, which is the most important shift of the needle that we have observed so significantly.
The full-overall body radioactive scan finished for neuroblastoma is identified as an MIBG scan and it is presented a “Curie score” – 10 segments of the human body are scored to 3, primarily based on how significantly cancer is current, which implies the optimum score it can exhibit is 30. In Might, Dominic’s score was 27 immediately after medical procedures and prior to commencing immunotherapy, his score was 26. Soon after the second round of immunotherapy, this most recent scan confirmed a score of 13.
His bone marrow biopsy showed what the doctor called “just a trace” of neuroblastoma cells, a reduction from the preceding 5 to 10%.
We pray that the immunotherapy treatment options continue on to be this efficient and that he will quickly be wholly cleared of the cancer that remains.
Dominic will have his 3rd round of immunotherapy the week soon after future, and then the fourth round about a month right after that, adopted by an additional established of scans.
Immunotherapy, compared with chemotherapy, does not result in white counts, platelets, or hemoglobin to fall, so we do not have to get worried about two times-weekly lab do the job or transfusions. We just need to have to go into clinic the moment a week to have his central line dressing modified.
In the Meantime…
Dominic started off kindergarten past 7 days! It has produced my coronary heart so pleased to see him enjoying regular 5-year-old lifestyle, demonstrating us the papers he’s worked on, and talking about the minor issues that have occurred in the course of the day.
Immediately after investing the last 6 months going back and forth from hospitals, inpatient stays for chemotherapy, surgery, infinite clinic visits, transfusions, radiation, and every thing in amongst, having some normalcy in everyday existence has been these kinds of a blessing for him.
AND he turns 6 this week! 🎉
You may perhaps have found a couple of new e-mails from me this previous week! Thank you so substantially for the wonderful responses!
I’m slowly and gradually beginning to get back again into the swing of things and with a a little bit a lot more predictable plan at property, I’m hoping to provide back again Friday Matters and deliver you tasty recipes on a semi-normal foundation again. Remain tuned 😋